Beyond that, we should also consider timing.
When might it not be an ideal time to quit your thyroid medications?
There are a couple of examples worth exploring, including:
- Your on meds for past cancer (with close management)
- Pregnant or nursing
The next thing to consider is having the right team in place. What you need is a team of professionals who can guide you and supervise you in the process – that person may or may not be your prescriber, either option can work.
In any case, though, your prescriber needs to be supporting you and think it’s a good idea to get their full support. That is going to help ensure that you are the best candidate possible for coming off or coming down from your current thyroid medication.
Step Two: Determining Dose Reduction
Could you reduce your thyroid medication by a little or by a lot?
The first thing to consider is how long you’ve been on treatment. There is a threshold that, beyond four years of being on medication, you may have become reliant on it (at least a little bit).
The next big factor that comes with this is overdosing.
If someone is put on too much thyroid medication, it can shut down the signal from the brain to the thyroid which helps the thyroid grow and repair itself (known as your TSH).
We also need to think about why you were put on thyroid medication in the first place.
This can be one of the most important considerations – in many cases, folks were not given a clear original diagnosis. Or, they were told it was for Hashimoto’s.
Let’s pull this one apart. Hashimoto’s is purely an immune attack, which can lead to hypothyroidism (a lack of thyroid hormone). They can overlap, but they are separate things – and the data is very clear on that.
If someone doesn’t have hypothyroidism to a marked degree, medications do not help with Hashimoto’s. Hashimoto’s alone is not a good reason, which means that if you were put on it for that reason you could benefit from winding down or ending your time on meds!
So, if Hashimoto’s doesn’t count as a reason, what are the degrees of hypothyroidism and how do they matter? Let’s consider three…
- Suboptimal thyroid function – While your labs might be normal, you are feeling that something is off and experiencing some symptoms. In this situation, medications are not likely to help.
- Subclinical thyroid function – Your TSH is elevated but your T4 levels have not shut down. Again, there is no average benefit from thyroid medication.
- Overt hypothyroidism – Your TSH is high and your thyroid has shut down. In these cases, medications can provide a net benefit (but you may not have to stay on them).
A couple of other factors that you may want to consider…
- Thyroid antibodies – You may have been told that you need to get your thyroid antibodies down to come off medication, but is that true? It may be, but you likely do not have to wait to get your antibodies down. In fact, coming off can be just as helpful.
- Positive family history – What happens if your whole family is on thyroid medication? The funny thing is that this tends to raise your odds of success when it comes to coming off thyroid medication. It may seem strange, but it’s true!
Step Three: Setting Realistic Expectations
The first thing to know in this step is that you may feel worse before you feel better.
*Yes, this part can be no fun (short-term)…but I can’t stress it enough. And you should know what may happen.
Studies have shown that most folks fall into one of three pretty equal categories:
- Symptoms and quit – By throwing in the towel, people will pause their taper and not go down further. The symptoms cause people to alter the process.
- Symptoms and push through – Some may truck on ahead and simply deal with the symptoms until they disappear.
- Almost no symptoms – Some may come off their medications and almost immediately feel better with no symptoms.
Most commonly, people will experience some kind of fatigue as part of their symptoms. And it tends to pass in short order, which is essentially like giving your thyroid a chance to get back online and get back to working again. You need to give it a chance.
Another good expectation to set is that coming off your thyroid medications may not resolve every last one of your symptoms.
You may have other things going on that are causing you harm, which is another reason why you need a good team in place.